light pink background with colorful text, "cerebral palsy grows up"

Cerebral palsy is the most common lifelong motor disability around the world, affecting millions. There are over 11 million adults worldwide living with cerebral palsy, many of whom have aged out of pediatric care without adequate support.

There are more than 700,000 adults in the US and 11 million worldwide living with cerebral palsy. A life with CP comes with its own challenges, and access to healthcare shouldn’t be one. Our goal is to empower adults with CP to expect the same standard of healthcare received by us all, accompanied by the knowledge to finally deliver it.

why does CPGU exist?

What Problems are we solving?

Healthcare for adults with cerebral palsy across the lifespan is severly lacking
Adults with cerebral palsy are left with no clear path forward after aging out of the pediatric healthcare system
There are significant gaps in the literature, coupled with the lack of access to providers who are equipped to provide quality care

How are we going to do it?

PROJECT PILLARS

Research

• Clinical Implementation

• Policy & Advocacy

• Knowledge Translation & Sharing

• Research • Clinical Implementation • Policy & Advocacy • Knowledge Translation & Sharing •

Knowledge Translation & Dissemination

We're taking scientific and medical research, personal stories, and complex information about cerebral palsy and making it accessible to people who don't have the time or advanced degrees to understand it all. Follow us on Instagram for real-time updates.

Research

We believe that adults with cerebral palsy deserve access to the same caliber of healthcare as adults without disabilities so that's why we're developing clinical practice guidelines to address gaps in research and improve access to specialized care.

CPF also partners with industry leaders on research to improve how tech and other accessible products serve our community. Sign up for project updates and research opportunities below.

Get Involved

Implementation

Once published, our clinical practice guidelines will be implemented as tools for primary care providers and clinicians in specialized healthcare centers so that adults with cerebral palsy can access the care they need as they age.

We'll look to establish CPF Centers of Excellence where the guidelines will initially be implemented in the US, UK, Ireland, and Australia.

Policy & Advocacy

For over a decade, CPF has led advocacy and awareness efforts for the entire cerebral palsy community — through campaigns like #GoGreen4CP, we've seen so much progress that's led to legislative action and dedicated funding to support CP research!

But we noticed that adults with CP were largely missing from the picture and we’re working to change that. By bringing more of our community into research, and equipping them with the knowledge and tools they need to become a better self-advocate, we know we'll have a big impact.

who is behind cpgu?

We pride ourselves on being led by adults with cerebral palsy, for adults with cerebral palsy. This is reflected in all teams that are assembled around the work we do, including our leadership team and advisory board.

We are a small, dynamic team full of agile thinkers who believe in working collaboratively across our different networks to build better healthcare for adults with cerebral palsy.