Clinical Practice Guidelines

Medical Care for Adults Living with Cerebral Palsy: A Clinical Practice Guideline

The guidelines will take a preventative care approach to establishing a standard of care for adults with cerebral palsy. Before guidelines can collectively be published, we will publish a systematic review for each of 11 focus areas.

FOCUS AREAS:

  • PAIN

  • MUSCULOSKELETAL HEALTH

  • GASTROINTESTINAL & LIVER HEALTH

  • ENDOCRINE HEALTH & MALNUTRITION

  • MENTAL HEALTH

  • SEXUAL & REPRODUCTIVE HEALTH

  • NEUROLOGICAL HEALTH

  • COGNITION

  • CARDIOMETABOLIC HEALTH

  • RESPIRATORY HEALTH

  • UROLOGICAL & RENAL HEALTH

published systematic reviews

Pain in adults

with cerebral palsy:

a systematic review

Lead Author:
JENNIFER RYAN
Director, CP Life Research Center
Royal College of Surgeons Ireland

Your community feedback tells us…

74%

Experience pain

Aren’t receiving adequate care

58%

ADDITIONAL
RESOURCES

Reframing Cerebral Palsy as a Lifelong Disability

Dr. Mark Peterson
New England Journal
of Medicine, Nov. 2024

Management and treatment of musculoskeletal problems in adults with cerebral palsy

Journal of Pediatric Rehabilitation Medicine, Mar. 2024

Cerebral Palsy Grows Up: A Commentary

Journal of the American Medical Association, June 2021

CPGU The Podcast: Episode 5 with Dr. Mark Peterson &
Dr. Jennifer Ryan

LEARN MORE ON INSTAGRAM

We’re so grateful to Abqara for sharing her story with our community and reminding us all that getting creative is just a part of life with cerebral palsy — but especially as a parent! Who can relate? 💚 Want a chance to be featured on o
Growing up with cerebral palsy and not knowing anyone else with a disability can be very isolating! Kudos to Hannah for becoming the kind of person (and author!) she needed when she was younger so that more children with CP can feel seen and understo
🎧 Listen to Cerebral Palsy Grows Up: The Podcast where ever you stream your audio! In episode five, our host @lexi_orban chats with adult CP research experts Dr. Jen Ryan and Dr. Mark Peterson about our clinical practice guidelines, how they got i
We asked adults with cerebral palsy to share what they’ve learned along the way about life with CP — here’s what Vivvi had to say. (And yes, Vivvi, you’re not alone — we get it!) 🧡 Want a chance to be featured on our
We’re back with another post breaking down recent research on adult cerebral palsy care. This piece by Dr. Ed Hurvitz and Dr. Mark Peterson, published in the Journal of the American Medical Association, comments on the urgent need to improve he
We asked adults with cerebral palsy to share what they’ve learned along the way about life with CP — here’s what Anke had to say.🩵 Want a chance to be featured on our feed? Submit your story at the link in our bio.
We asked adults with cerebral palsy to share what they’ve learned along the way about life with CP, and what they want to see happen in healthcare. Here’s what Morgan had to say.🩷 Want a chance to be featured on our feed? Submit your st